Families can request cookies, or one fun cake per year or a one time dream cake.
You see, Fred has Diamond Blackfan Anemia, a disorder that causes failure of the bone marrow to make new red blood cells. The families hope was to manage the disorder with transfusions which became a normal part of their everyday life. But in Dec of 2010 test results would show this was no longer a viable long-term solution at which point Fred became a candidate for a bone marrow transplant. And so the families journey continued.
I was excited and nervous to meet Fred. The nervous part was whether or not I would cry. As a parent of a 15 year old boy, knowing any child is going through something that is causing them pain just makes my heart hurt for them. I knew he had, had his spleen removed on St. Patricks day and was hopeful his counts were holding strong.